Resources Archive

Developing social skills and fostering independence are two good reasons to send a child to camp. For kids with Epidermolysis Bullosa, it’s a chance to meet and make friends with others who have EB, all while having a good time. debra of America’s resource page — http://www.debra.org/EBcamps — provides parents and caregivers with information about places where children and teens with EB are given the opportunity to experience camp safely.

Healthful food choices might be able to help with recovery from various wounds by providing the energy, vitamin, mineral and protein requirements necessary to promote healing, according to the U.S. Academy of Nutrition and Dietetics.

Most adults who use wheelchairs or the caregivers of child wheelchair users are familiar with pressure sores. These wounds are created when blood supply is cut to part of the skin and, if that skin is under pressure, irritation and sores follow.

The organization debra has stressed that clothing plays just as important a role for people with EB as for healthy ones.

People with lower limb paralysis or who spend long periods of time in wheelchairs are at high risk of developing pressure sores or ulcers. What causes pressure ulcers? According to the Christopher and Dana Reeve Foundation, sliding around in a bed or chair can cause blood vessels to stretch or bend, leading to pressure ulcers. An abrasion can occur when a person’s skin is pulled across a surface instead of lifted. Other causes of pressure sores are braces or hard objects that put pressure on your skin.